tag:blogger.com,1999:blog-7636227913766177194.post172987674642258461..comments2023-10-19T09:16:56.502-04:00Comments on Journey To Josie: ProactiveNicolehttp://www.blogger.com/profile/00994937261069028024noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-7636227913766177194.post-81503109697600282582012-12-12T00:42:31.135-05:002012-12-12T00:42:31.135-05:00I'm praying for Gabe and you. I know that God ...I'm praying for Gabe and you. I know that God doesn't pay any attention to the odds that medical people like to talk about.Cristihttps://www.blogger.com/profile/07032299329910192166noreply@blogger.comtag:blogger.com,1999:blog-7636227913766177194.post-85666270397026530712012-12-11T12:39:26.578-05:002012-12-11T12:39:26.578-05:00You are such a good mommy -- praying for you and f...You are such a good mommy -- praying for you and for your sweet Gabe!Anonymoushttps://www.blogger.com/profile/07877682982361449979noreply@blogger.comtag:blogger.com,1999:blog-7636227913766177194.post-51969010059491870372012-12-11T10:36:47.192-05:002012-12-11T10:36:47.192-05:00oh, wow. this just broke my heart. will pray!!oh, wow. this just broke my heart. will pray!!Annahttps://www.blogger.com/profile/17334440538488591130noreply@blogger.comtag:blogger.com,1999:blog-7636227913766177194.post-61696080574826357402012-12-11T07:36:41.327-05:002012-12-11T07:36:41.327-05:00My first cousin had something called dilated cardi...My first cousin had something called dilated cardiomyopathy (or an enlarged heart)...by the time we found out it was to late for anything but a heart transplant (he was 13)...fast forward 12 years and his daughter is dignosed with the samething (he talked to his doctors before having a child they told him not to worry)...they caught her's a little sooner and tried to treat it with meds. So I know that waiting feeling...do you hope for the meds to work...or for her to get worse that she can get the transplant she needs. She did end up and have to have a transplant at 9 months of age.<br /><br />But your a mom...go with your gut! It's not going to hurt to get a second opinion. Anonymoushttps://www.blogger.com/profile/14584496348454764353noreply@blogger.comtag:blogger.com,1999:blog-7636227913766177194.post-74127493492289008452012-12-10T21:54:31.318-05:002012-12-10T21:54:31.318-05:00I live in Boston and love your blog. Please let me...I live in Boston and love your blog. Please let me know if I can help with anything! Metzger.sarah@gmail.comAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7636227913766177194.post-51845100402414321342012-12-10T15:51:11.674-05:002012-12-10T15:51:11.674-05:00Hi, I'm a lurker, but I thought I would step o...Hi, I'm a lurker, but I thought I would step out of the shadows to comment on this post. :)<br /><br />First, thank you for sharing Gabe's heart journey with us. He is an incredible boy and you are an incredible mom to him. I know that seeking a second opinion may seem very scary, but I think you are doing the best thing for him! It never hurts to get another opinion from other doctors. Even if they can't offer other treatment options, I think you will be a better advocate for Gabe by going through this experience. Jackienoreply@blogger.comtag:blogger.com,1999:blog-7636227913766177194.post-38499324051390462972012-12-10T14:01:00.991-05:002012-12-10T14:01:00.991-05:00So glad that you are seeking out a second opinion....So glad that you are seeking out a second opinion. There is nothing wrong in doing that. Praying that Boston can give you some clear answers to what is best for Gabe. {{{HUG}}}Stefeniehttps://www.blogger.com/profile/04278714232697499851noreply@blogger.comtag:blogger.com,1999:blog-7636227913766177194.post-42333425184698384772012-12-10T13:38:03.340-05:002012-12-10T13:38:03.340-05:00Nicole,
Gabe is blessed to have been given a moth...Nicole,<br /><br />Gabe is blessed to have been given a mother like you. We are to go to the "ends of the earth" for our children, especially when we believe it is the right thing to do. Be encouraged that you are doing the right thing until God places it in your heart that what you are being told is final/or what you should do regarding a transplant. If a transplant is necessary, then I believe that He will give you the peace you need regarding the matter.Milk and Honey Mommyhttps://www.blogger.com/profile/07469966524091830917noreply@blogger.comtag:blogger.com,1999:blog-7636227913766177194.post-89564515224309868742012-12-10T11:20:42.884-05:002012-12-10T11:20:42.884-05:00Hi Nicole, this post really broke my heart. You ar...Hi Nicole, this post really broke my heart. You are SO right and SO strong to be fighting for your son. I'm not sure if you've ever connected with this blogger, but her child also has HLHS:<br />http://mendingheartsandbendingknees.blogspot.ca/<br /><br />Blessings!Brianna Bellhttps://www.blogger.com/profile/17656194705358571012noreply@blogger.comtag:blogger.com,1999:blog-7636227913766177194.post-546342701143536982012-12-10T11:00:07.241-05:002012-12-10T11:00:07.241-05:00Good for you Nicole! Even if Boston feels transpla...Good for you Nicole! Even if Boston feels transplant is still the best option at least you can have a little peace in knowing that you've gotten a second opinion and no where better from than Boston. Sending thoughts and prayers to your family! Jennyhttps://www.blogger.com/profile/03815949154302796501noreply@blogger.com